“How to Tell When We Will Die: On Pain, Disability, and Doom” — Johanna Hedva
It is a tremendous book, a balm to my heart, and a piercing cry for those of us left alone to die. The words imbued in these pages are...
top of page
Hannah Crazyhawk
Hannah Crazyhawk
Sep 30
The Nightstand
I always feel pressure to post aesthetic photos that are perfectly executed to appeal to the artist’s eye. However, I can’t take those...
Hannah Crazyhawk
Jul 9
A Heart’s Own
I wish I could have gone to medical school. I would have chosen dermatology, surgery, or palliative care. Instead, I’m barely keeping...
Hannah Crazyhawk
May 21
Burning Alive
Burning Alive
Hannah Crazyhawk
Sep 30, 2023
The Hummingbird
Waves of grief washed over me as I stepped onto my patio to refill my bird feeders. I’ll miss these little creatures, my only company. I...
Hannah Crazyhawk
Jul 14, 2023
Flesh
So many new diagnoses. My out-of-pocket expenses continue to grow. The amount of skin care products and treatments I need is endless....
Hannah Crazyhawk
Jun 2, 2023
Deroofing Surgery Sucks
Today brought to you by exuding wounds breaching hydrocolloid dressings. I had a deroofing surgery for my hidradenitis suppurativa on my...
Hannah Crazyhawk
Feb 23, 2023
Snow
As evening arrived, gentle snow began to fall on the treetops. The dark soon followed but with a blanket of silent snowfall. You've just...
Hannah Crazyhawk
Feb 1, 2023
Do No Harm
It's time for doctors of patients with Hidradenitis Suppurativa to listen to their patient's needs for pain control. Dismissing, blaming,...
Hannah Crazyhawk
Dec 5, 2022
Hidradenitis suppurativa is Hell
I detest hidradenitis suppurativa. It's killing me from the inside out and there is nothing I can do but watch helplessly while my flesh...
Hannah Crazyhawk
Aug 8, 2022
Meaning
Today was about a doctor's appointment. I feel like it was such a wasted day. I spent hours getting ready. I didn't sleep because of my...
Hannah Crazyhawk
May 31, 2022
Sepsis Survivor
Today is my one-year anniversary since my first septic event from hidradenitis suppurativa. It was the most horrible medical pain I've...
Hannah Crazyhawk
May 28, 2022
Moving
I have great news. I'm moving to Portland next week for my health and safety. I wish I could have made this update sooner, but I've been...
Hannah Crazyhawk
Apr 16, 2022
Birthday
Hi, world, My birthday is April 23rd. It's been a hell year for me. I'm posting this to ask you my friends for any kindness and or...
Hannah Crazyhawk
Apr 10, 2022
Endometriosis
Today brought to you by endometriosis, menstruation, and a baseball-sized ovarian cyst clawing its way out of me. So, I'm laying as still...
Hannah Crazyhawk
Mar 24, 2022
A Hug
Triggering content: mental health, trauma, hospitals When I was first hospitalized for sepsis last year, I met someone from Ukraine who...
Hannah Crazyhawk
Feb 8, 2022
Cranial Massage Therapy
I want to share some excellent news with you. I've been receiving cranial massage therapy for a month now. It is the only thing that has...
Hannah Crazyhawk
Dec 24, 2020
2021
Happy holidays my friends! I had chemotherapy on Monday and am doing my best to have a decent holiday week. My apartment complex is like...
Hannah Crazyhawk
Dec 8, 2020
Bose
While I was growing up, I had no idea I was autistic. All I knew was that music brought me peace when nothing else could, even through...
Hannah Crazyhawk
Oct 27, 2020
"Gilded"
Too many falls I've watched from this bed Too many days lost To the pain To the fatigue To the remains I mourn alone In this gilded cage
bottom of page