“How to Tell When We Will Die: On Pain, Disability, and Doom” — Johanna Hedva
It is a tremendous book, a balm to my heart, and a piercing cry for those of us left alone to die. The words imbued in these pages are...
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Hannah Crazyhawk
Hannah Crazyhawk
Sep 30
The Nightstand
I always feel pressure to post aesthetic photos that are perfectly executed to appeal to the artist’s eye. However, I can’t take those...
Hannah Crazyhawk
May 21
Burning Alive
Burning Alive
Hannah Crazyhawk
Dec 28, 2023
Unmasking in Starbucks
Today was absolute shit, except for a small window of time in Starbucks. After my oncology appointment, I had to pick up a prescription....
Hannah Crazyhawk
Jul 14, 2023
Flesh
So many new diagnoses. My out-of-pocket expenses continue to grow. The amount of skin care products and treatments I need is endless....
Hannah Crazyhawk
Jun 2, 2023
Deroofing Surgery Sucks
Today brought to you by exuding wounds breaching hydrocolloid dressings. I had a deroofing surgery for my hidradenitis suppurativa on my...
Hannah Crazyhawk
Feb 22, 2023
Snow
As evening arrived, gentle snow began to fall on the treetops. The dark soon followed but with a blanket of silent snowfall. You've just...
Hannah Crazyhawk
Dec 4, 2022
Hidradenitis suppurativa is Hell
I detest hidradenitis suppurativa. It's killing me from the inside out and there is nothing I can do but watch helplessly while my flesh...
Hannah Crazyhawk
Mar 24, 2022
A Hug
Triggering content: mental health, trauma, hospitals When I was first hospitalized for sepsis last year, I met someone from Ukraine who...
Hannah Crazyhawk
Sep 12, 2020
Emergency
The air quality is still hazardous here. Yesterday I had an asthma attack. It hurt so much to breathe. My heart beat was erratic and...
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