top of page
  • Writer's pictureHannah Crazyhawk

Take a Stand

Updated: Jun 5, 2020

If you're chronically ill you know it's absolutely essential to have a good primary care physician. If you don't, things go downhill fast. For the past year I've been struggling with a primary doctor who never actually listened to the things I said. In my last two visits with her she asked, (the same question both times) "who told you that you have Rheumatoid Arthritis?" She would examine my hands each time and doubt my diagnosis (that a rheumatologist gave me!). After my last few appointments with her I felt anxious, marginalized, and discouraged. So, I spoke with my therapist, who I didn't expect to literally help with anything but with her understanding and encouragement. She said their clinic had primary physicians! She recommended a nurse practitioner and I made my new patient appointment that day. I went to that appointment today and I must admit, I was pleasantly surprised. My new doctor was young, compassionate, thorough, understanding, and validating. Their clinic provides trauma-informed care as well. The difference was fantastic. My doctor told me that she admired my dedication to full-time school, despite my numerous conditions. And the nurse told me that I was managing my healthcare very well. Being chronically ill often makes us feel trapped in doctor patient relationships that are unhealthy. If you're in the position, stand up for your healhcare. I assure you, no one else will.   

#spoonie #doctor #chronicillness #TrigeminalNeuralgia

18 views0 comments

Recent Posts

See All

As evening arrived, gentle snow began to fall on the treetops. The dark soon followed but with a blanket of silent snowfall. You've just found your cozy, velvet hot water bottle. Its warmth stills the

It's time for doctors of patients with Hidradenitis Suppurativa to listen to their patient's needs for pain control. Dismissing, blaming, shaming, and degrading people in pain is barbaric, and doctors

I detest hidradenitis suppurativa. It's killing me from the inside out and there is nothing I can do but watch helplessly while my flesh rots and deforms. The pain is endless. Imagine burning pliers a

bottom of page