Trigger warning ahead: I have Hidradenitis suppurativa, Stage 3. It is a chronic autoimmune disease with no cure. It has been untreated my whole life. It started when I was about eight years old. I am thirty-five now. I am terrified and humiliated to tell my story. But it needs to be heard. My groin and thighs are covered with boils. My father would restrain me and stab thumb tacks into the boils before he raped me. I have never asked a doctor about them. They are a constant
I spent last night in the hospital with a post surgical infection. I am so tired. Today I got a call from my mom. She is, as I write this, spreading my grandfather's ashes on the beaches of Biorka Island near Sitka, AK. My grandmother's ashes are there too. They will now be back to the earth in the wilds of Alaska together, in a place where they happily lived while my grandfather worked for the FAA. COVID-19 took my grandfather from me. I never got to say goodbye. And now, be
Dear able-bodied people,
• Stop asking us if we're better yet.
• Please READ the definition of the word chronic.
• Stop pushing your "miracle cures" on us.
• STOP, for the love of fuck, telling us to do more Yoga.
• And if one more person tells me I'm not trying hard enough and to think positively, I will fling them so deep into the sun that they will start fusing hydrogen in their assholes!!! #PleaseStop #chronicillness #ableism #chronicpain #spoonie #surgery #Tr
I am still here. My surgeon yanked out both my gallbladder and appendix. It was one of the most horrific, terrifying, and painful surgeries that I've ever had. My symptoms (101° fever, extreme right upper quadrant abdominal pain, sternum pain, 150 HR at resting, vomiting, bile reflux, fatigue, jaundice, lack of appetite, not eating, etc...) have all been present for a YEAR. And my former primary "doctor" literally kept telling me to stretch and do yoga and that these thing